Come by and say hello sometime! Sign up. Already a member? Play now. Courtney Gee. By Isaac Haxton 2nd November By Mike Sexton 22nd July Unfortunately our support staff can only reply in English, but we are generally able to translate and understand non English incoming emails.

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Learn More. So when she made the suggestion herself, my day got so much easier and so much better! I was all smiles that day.

I got off the medication completely after Twitchcon in October, which was two months ago. So much of the pain I had from the lupus diagnosis was psychological, which can sometimes be worse than physical pain.

We had some tentative travel plans for this year, but there was one thing stopping me: I wanted to reduce the amount of medication I was on. My body is a lot more vulnerable while tapering medication, which makes it a poor idea to travel while attempting to do so.

So I had to choose: travel or taper. I chose taper. If I think about it, I feel really anxious and stressed out.

It makes me feel sick to think about all the drugs I take on a daily basis. Anyway, I started tapering during the second half of last year.

Basically I reduce the dosage of one of my meds by 25 mg every 3 months or so. My most recent taper was a couple weeks ago.

Most lupus patients are actually able to not take them at all for two weeks before they see any negative affects. Sometimes it takes months for the negative affects to take place.

This is why I have to wait 3 months in between tapers. If my doctor had it her way, I would be waiting 6 months in between tapers. Today she told me that she thought I should go back up to 50 mg.

She wanted me to increase my meds back to what they were before they developed. In the end, I got my way and she told me to keep an eye on the lesions.

She did caution me, though, that I had to take this seriously. She had never told me this before, but she told me that she has another patient with CNS lupus and that person never recovered from their initial flare up.

She said that I was able to get back to my normal self last time, but if I flare again, will I bounce back again?

Talk about a damper on my day. I have been feeling like shit about the convo every since it happened. Sometimes I get a little sad that I have to deal with it, but I usually get over it pretty quickly because my life is still pretty sweet.

Today is a little harder. It tilts me that I have to poison myself to have a life now. But at least I am alive now.

Anyway, this is a little bit if a vent. Sorry for the rant. For a more uplifting version of Courtney, check out my latest vlog. And I have to approach this trip with some amount of trepidation because it marks the two year anniversary of when I got very sick and eventually became diagnosed with lupus.

But here are the cliffs: had a cold, went to Pennsylvania for Thanksgiving, got sick with pneumonia, went home, got Scarlet fever, went to hospital, lupus diagnosis.

I spent most of my visit in bed sick with fever two years ago. This was the first time I had ever met them, too!

As for my health, things seem to be going well. With regards to my medication, however, I always have it in the back of my mind that I need to get off it.

When I think about it too hard while taking it, I have a sick feeling in the pit of my stomach about the situation. I never took any medication ever.

Are they necessary? So I keep taking the pills. Excruciatingly slowly. I definitely need the break, though. But yes, I need this break. Not only that, games are very tough at the moment thanks to a high number of regs in the games at the moment.

Thanks for reading. And now, back to direwolves and dragons. Regular viewers of my Twitch stream will be pleased to know that I heard several people ordering tomato juice during the beverage service.

It was a tough game and I definitely had to have things go in my favor to win it! I feel extremely fortunate to spin my first 25x in my highest buy-in, as well.

Talk about lucky. I hope it continues through until the end of the month! If you watch my Twitch stream, thank you so much for your support!

But SO much is happening right now. This was an extremely difficult decision for me and one that took me months to make.

I decided to leave mostly because of my Twitch stream. For these reasons, I decided to leave. It was a very sad day for me, to be completely honest.

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